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Genetic Testing : Policy Issues for the New Millennium
Authors: --- --- ---
ISBN: 1280034246 9786610034246 9264188576 9264183043 Year: 2001 Publisher: Paris : OECD Publishing,

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Abstract

Genetic tests are being developed at an impressive rate and a significant number has already reached the market. Substantial involvement of the private sector has led to unprecedented growth in commercial genetic testing services and in trade of such services. This trend is expected to increase as knowledge gained from the mapping of the human genome and of single nucleotide polymorphisms (SNPs) is applied to the identification of disease-causing genes and of inherited differences in drug response. The potential socio-economic and ethical impacts are staggering. This report provides a state-of-the art review of advances in genetic testing and of main international policy concerns drawing from the OECD workshop on "Genetic Testing: Policy Issues for the New Millennium", held in Vienna on 23-25 February 2000.

Keywords

Human chromosome abnormalities -- Diagnosis -- Congresses. --- Human chromosome abnormalities -- Diagnosis -- Social aspects -- Congresses. --- Human chromosome abnormalities. --- Human chromosome abnormalities --- Public Policy --- Genetic Techniques --- Diagnostic Techniques and Procedures --- Genetic Services --- Diagnostic Services --- Health Services --- Social Control Policies --- Preventive Health Services --- Diagnosis --- Investigative Techniques --- Analytical, Diagnostic and Therapeutic Techniques and Equipment --- Health Care Facilities, Manpower, and Services --- Social Control, Formal --- Policy --- Community Health Services --- Social Sciences --- Health Care Economics and Organizations --- Health Care --- Sociology --- Anthropology, Education, Sociology and Social Phenomena --- Genetic Testing --- Health Policy --- Medicine --- Health & Biological Sciences --- Pathology --- Genetic Screening --- Predictive Genetic Testing --- Predictive Testing, Genetic --- Testing, Genetic Predisposition --- Genetic Predisposition Testing --- Genetic Predictive Testing --- Genetic Screenings --- Genetic Testing, Predictive --- Predisposition Testing, Genetic --- Screening, Genetic --- Screenings, Genetic --- Testing, Genetic --- Testing, Genetic Predictive --- Testing, Predictive Genetic --- Genetic Predisposition to Disease --- National Health Policy --- Health Policies --- Health Policies, National --- Health Policy, National --- National Health Policies --- Policies, Health --- Policies, National Health --- Policy, Health --- Policy, National Health --- General Social Development and Population --- Community-Based Distribution --- Contraceptive Distribution --- Delivery of Healthcare --- Dental Care Delivery --- Distribution, Non-Clinical --- Distribution, Nonclinical --- Distributional Activities --- Healthcare --- Healthcare Delivery --- Healthcare Systems --- Non-Clinical Distribution --- Nonclinical Distribution --- Delivery of Dental Care --- Health Care Delivery --- Health Care Systems --- Activities, Distributional --- Activity, Distributional --- Care, Health --- Community Based Distribution --- Community-Based Distributions --- Contraceptive Distributions --- Deliveries, Healthcare --- Delivery, Dental Care --- Delivery, Health Care --- Delivery, Healthcare --- Distribution, Community-Based --- Distribution, Contraceptive --- Distribution, Non Clinical --- Distributional Activity --- Distributions, Community-Based --- Distributions, Contraceptive --- Distributions, Non-Clinical --- Distributions, Nonclinical --- Health Care System --- Healthcare Deliveries --- Healthcare System --- Non Clinical Distribution --- Non-Clinical Distributions --- Nonclinical Distributions --- System, Health Care --- System, Healthcare --- Systems, Health Care --- Systems, Healthcare --- Healthcare Economics and Organizations --- Science, Social --- Sciences, Social --- Social Science --- Community Healthcare --- Health Services, Community --- Services, Community Health --- Community Health Care --- Care, Community Health --- Community Health Service --- Community Healthcares --- Health Care, Community --- Health Service, Community --- Healthcare, Community --- Healthcares, Community --- Service, Community Health --- Policies --- Regulation --- Social Control --- Control, Social --- Controls, Social --- Formal Social Control --- Formal Social Controls --- Regulations --- Social Controls --- Healthcare Facilities, Manpower, and Services --- Investigative Technics --- Investigative Technic --- Investigative Technique --- Technic, Investigative --- Technics, Investigative --- Technique, Investigative --- Techniques, Investigative --- Antemortem Diagnosis --- Diagnoses and Examinations --- Examinations and Diagnoses --- Postmortem Diagnosis --- Antemortem Diagnoses --- Diagnoses --- Diagnoses, Antemortem --- Diagnoses, Postmortem --- Diagnosis, Antemortem --- Diagnosis, Postmortem --- Postmortem Diagnoses --- Disease --- Health Services, Preventive --- Preventive Health --- Preventive Health Care --- Preventive Health Programs --- Preventive Programs --- Services, Preventive Health --- Care, Preventive Health --- Health Care, Preventive --- Health Program, Preventive --- Health Programs, Preventive --- Health Service, Preventive --- Health, Preventive --- Preventive Health Program --- Preventive Health Service --- Preventive Program --- Program, Preventive --- Program, Preventive Health --- Programs, Preventive --- Programs, Preventive Health --- Service, Preventive Health --- Control Policies, Social --- Control Policy, Social --- Policies, Social Control --- Policy, Social Control --- Social Control Policy --- Services, Health --- Health Service --- Service, Health --- Services, Diagnostic --- Diagnostic Service --- Service, Diagnostic --- Services, Genetic --- Genetic Service --- Service, Genetic --- Diagnostic Technics and Procedures --- Technics and Procedures, Diagnostic --- Techniques and Procedures, Diagnostic --- Genetic Technic --- Genetic Technics --- Genetic Technique --- Technic, Genetic --- Technics, Genetic --- Technique, Genetic --- Techniques, Genetic --- Genetics --- Migration Policy --- Population Policy --- Social Protection --- Social Policy --- Migration Policies --- Policies, Migration --- Policies, Population --- Policies, Public --- Policies, Social --- Policy, Migration --- Policy, Population --- Policy, Public --- Policy, Social --- Population Policies --- Protection, Social --- Public Policies --- Social Policies --- Human chromosomes --- diagnosis --- methods --- Abnormalities --- Prenatal Diagnosis --- Preimplantation Diagnosis --- Cytogenetic Analysis --- Molecular Diagnostic Techniques --- Databases, Genetic --- Databases, Nucleic Acid --- Genetic Privacy --- Policy Making --- Public Health Administration --- Social Work --- Community Health Planning --- Preventive Medicine --- Preventive Psychiatry --- Primary Prevention --- Genetic Therapy --- Sensitivity and Specificity --- Genetic Counseling --- Genetic Phenomena --- Chromosome abnormalities --- Genetic disorders --- Affirmative Action --- Action, Affirmative --- Genetic Testing. --- Health Policy. --- Europe. --- Healthcare Policy --- Healthcare Policies --- Policy, Healthcare --- Northern Europe --- Southern Europe --- Western Europe --- Genetic Tests --- Health Care Policies --- Care Policies, Health --- Health Care Policy --- Policies, Health Care --- Policies, Healthcare --- Policy, Health Care


Book
Information technology for patient empowerment in healthcare
Authors: --- ---
ISBN: 1614515921 9781614514350 9781614515920 1614519552 1614514348 9781614514343 9781614519553 1614514356 Year: 2015 Publisher: Berlin Boston

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Abstract

Aims and ScopePatients are more empowered to shape their own health care today than ever before. Health information technologies are creating new opportunities for patients and families to participate actively in their care, manage their medical problems and improve communication with their healthcare providers. Moreover, health information technologies are enabling healthcare providers to partner with their patients in a bold effort to optimize quality of care, improve health outcomes and transform the healthcare system on the macro-level.In this book, leading figures discuss the existing needs, challenges and opportunities for improving patient engagement and empowerment through health information technology, mapping out what has been accomplished and what work remains to truly transform the care we deliver and engage patients in their care. Policymakers, healthcare providers and administrators, consultants and industry managers, researchers and students and, not least, patients and their family members should all find value in this book. "In the exciting period that lies just ahead, more will be needed than simply connecting patients to clinicians, and clinicians to each other. The health care systems that will be most effective in meeting patients' needs will be those that can actually design their 'human wares' around that purpose. This book provides deep insight into how information technology can and will support that redesign."Thomas H. Lee, MD, MSc, Chief Medical Officer, Press Ganey Associates; Professor of Medicine, Harvard Medical School and Professor of Health Policy and Management, Harvard School of Public Health The Editors: Drs. Maria Adela Grando, Ronen Rozenblum and David W. Bates are widely recognized professors, researchers and experts in the domain of health information technology, patient engagement and empowerment. Their research, lectures and contributions in these domains have been recognized nationally and internationally. Dr. Grando is affiliated with Arizona State University and the Mayo Clinic, and Drs. Rozenblum and Bates are affiliated with Brigham and Women's Hospital and Harvard University.

Keywords

Health Communication --- Medical Informatics Applications. --- Patient Participation --- Patient-Centered Care --- Professional-patient relations. --- methods. --- Medical care -- Technological innovations. --- Medical technology -- Management. --- Medicine -- Practice -- Technological innovations. --- Patient-centered health care. --- Patient Care Management --- Consumer Participation --- Interpersonal Relations --- Medical Informatics --- Patient Acceptance of Health Care --- Communication --- Comprehensive Health Care --- Delivery of Health Care --- Primary Health Care --- Health Care Facilities, Manpower, and Services --- Investigative Techniques --- Health Care --- Attitude to Health --- Information Science --- Health Care Quality, Access, and Evaluation --- Analytical, Diagnostic and Therapeutic Techniques and Equipment --- Health Services Administration --- Community Health Services --- Psychology, Social --- Consumer Organizations --- Health Services --- Organizations --- Behavior and Behavior Mechanisms --- Psychiatry and Psychology --- Health Care Economics and Organizations --- Medical Informatics Applications --- Methods --- Professional-Patient Relations --- Medicine --- Health & Biological Sciences --- Medical & Biomedical Informatics --- Contacting Clients --- Professional Patient Relationship --- Client, Contacting --- Clients, Contacting --- Contacting Client --- Professional Patient Relations --- Professional Patient Relationships --- Professional-Patient Relation --- Relation, Professional-Patient --- Relations, Professional-Patient --- Relationship, Professional Patient --- Relationships, Professional Patient --- Medical Home --- Nursing, Patient-Centered --- Patient-Centered Nursing --- Patient-Focused Care --- Care, Patient-Centered --- Care, Patient-Focused --- Home, Medical --- Homes, Medical --- Medical Homes --- Nursing, Patient Centered --- Patient Centered Care --- Patient Centered Nursing --- Patient Focused Care --- Methodological Studies --- Methodological Study --- Procedures --- Studies, Methodological --- Study, Methodological --- Method --- Procedure --- Patient Activation --- Patient Empowerment --- Patient Engagement --- Patient Involvement --- Patient Participation Rates --- Activation, Patient --- Empowerment, Patient --- Engagement, Patient --- Involvement, Patient --- Participation Rate, Patient --- Participation Rates, Patient --- Participation, Patient --- Patient Participation Rate --- Application, Medical Informatics --- Applications, Medical Informatics --- Informatics Applications, Medical --- Informatics Application, Medical --- Medical Informatics Application --- Communication, Health --- Communications, Health --- Health Communications --- Healthcare Economics and Organizations --- Non-Governmental Organizations --- Nongovernmental Organizations --- Organizations, Nongovernmental --- Non Governmental Organizations --- Non-Governmental Organization --- Nongovernmental Organization --- Organization --- Organization, Non-Governmental --- Organization, Nongovernmental --- Organizations, Non-Governmental --- Services, Health --- Health Service --- Service, Health --- Organizations, Consumer --- Consumer Organization --- Organization, Consumer --- Social Psychology --- Psychologies, Social --- Social Psychologies --- Community Healthcare --- Health Services, Community --- Services, Community Health --- Community Health Care --- Care, Community Health --- Community Health Service --- Community Healthcares --- Health Care, Community --- Health Service, Community --- Healthcare, Community --- Healthcares, Community --- Service, Community Health --- Administration, Health Services --- Healthcare Quality, Access, and Evaluation --- Information Sciences --- Science, Information --- Sciences, Information --- Computer Science, Medical --- Health Information Technology --- Informatics, Clinical --- Informatics, Medical --- Information Science, Medical --- Clinical Informatics --- Medical Computer Science --- Medical Information Science --- Health Information Technologies --- Information Technologies, Health --- Information Technology, Health --- Medical Computer Sciences --- Medical Information Sciences --- Science, Medical Computer --- Technologies, Health Information --- Technology, Health Information --- Gender Issues --- Husband-Wife Communication --- Partner Communication --- Relations, Gender --- Gender Relations --- Social Interaction --- Communication, Husband-Wife --- Communication, Partner --- Communications, Husband-Wife --- Communications, Partner --- Gender Issue --- Gender Relation --- Husband Wife Communication --- Husband-Wife Communications --- Interaction, Social --- Interactions, Social --- Interpersonal Relation --- Issue, Gender --- Issues, Gender --- Partner Communications --- Relation, Gender --- Relation, Interpersonal --- Relations, Interpersonal --- Social Interactions --- Community Involvement --- Public Participation --- Community Action --- Consumer Involvement --- Action, Community --- Actions, Community --- Community Actions --- Community Involvements --- Consumer Involvements --- Involvement, Community --- Involvement, Consumer --- Involvements, Community --- Participation, Community --- Participation, Consumer --- Participation, Public --- Care Management, Patient --- Management, Patient Care --- Health Attitude --- Attitude, Health --- Attitudes, Health --- Health Attitudes --- Health, Attitude to --- Community-Based Distribution --- Contraceptive Distribution --- Delivery of Healthcare --- Dental Care Delivery --- Distribution, Non-Clinical --- Distribution, Nonclinical --- Distributional Activities --- Healthcare --- Healthcare Delivery --- Healthcare Systems --- Non-Clinical Distribution --- Nonclinical Distribution --- Delivery of Dental Care --- Health Care Delivery --- Health Care Systems --- Activities, Distributional --- Activity, Distributional --- Care, Health --- Community Based Distribution --- Community-Based Distributions --- Contraceptive Distributions --- Deliveries, Healthcare --- Delivery, Dental Care --- Delivery, Health Care --- Delivery, Healthcare --- Distribution, Community-Based --- Distribution, Contraceptive --- Distribution, Non Clinical --- Distributional Activity --- Distributions, Community-Based --- Distributions, Contraceptive --- Distributions, Non-Clinical --- Distributions, Nonclinical --- Health Care System --- Healthcare Deliveries --- Healthcare System --- Non Clinical Distribution --- Non-Clinical Distributions --- Nonclinical Distributions --- System, Health Care --- System, Healthcare --- Systems, Health Care --- Systems, Healthcare --- Investigative Technics --- Investigative Technic --- Investigative Technique --- Technic, Investigative --- Technics, Investigative --- Technique, Investigative --- Techniques, Investigative --- Healthcare Facilities, Manpower, and Services --- Primary Healthcare --- Primary Care --- Care, Primary --- Care, Primary Health --- Health Care, Primary --- Healthcare, Primary --- Comprehensive Healthcare --- Health Care, Comprehensive --- Healthcare, Comprehensive --- Communication Programs --- Communications Personnel --- Misinformation --- Personal Communication --- Communication Program --- Communication, Personal --- Personnel, Communications --- Program, Communication --- Programs, Communication --- Acceptability of Healthcare --- Acceptors of Health Care --- Health Care Utilization --- Nonacceptors of Health Care --- Patient Acceptance of Healthcare --- Acceptability of Health Care --- Health Care Seeking Behavior --- Care Acceptor, Health --- Care Acceptors, Health --- Care Nonacceptor, Health --- Care Nonacceptors, Health --- Health Care Acceptability --- Health Care Acceptor --- Health Care Acceptors --- Health Care Nonacceptor --- Health Care Nonacceptors --- Healthcare Acceptabilities --- Healthcare Acceptability --- Healthcare Patient Acceptance --- Healthcare Patient Acceptances --- Utilization, Health Care --- organization & administration --- Pharmacist-Patient Relations --- Pharmacist Patient Relations --- Pharmacist-Patient Relation --- Relation, Pharmacist-Patient --- Relations, Pharmacist-Patient --- Truth Disclosure --- Teach-Back Communication --- Refusal to Participate --- Biomedical Engineering --- Public Health Administration --- Social Work --- Community Health Planning --- Health Informatics --- Informatics, Health --- Computational Biology --- Biomedical Technology --- American Recovery and Reinvestment Act --- Friends --- Emotional Intelligence --- Political Activism --- Patient Care Planning --- Public Opinion --- Family Practice --- Patient Satisfaction --- Medical informatics --- Patient-centered health care --- Communication in medicine --- Patient participation --- Community Participation --- E-books --- Psychology, Perceptual --- Perceptual Psychology --- Medical cooperation --- Participation --- Therapist and patient --- Health communication --- Medical communication --- Medical care --- Clinical informatics --- Health informatics --- Medical information science --- Information science --- Data processing --- Professional-Patient Relations. --- methods --- Social Communication --- Communication, Social --- Communications, Social --- Social Communications --- Social Relationships --- Relationship, Social --- Relationships, Social --- Social Relationship --- Social Behavior --- Health Care Economics --- Health Economics --- Healthcare Economics --- Care Economic, Health --- Economic, Health --- Economic, Health Care --- Economic, Healthcare --- Economics, Health Care --- Health Care Economic --- Health Economic --- Healthcare Economic --- Behavior And Behavior Mechanism --- Medical informatics. --- Hospital care --- Communication in medicine. --- Patient participation. --- Quality control. --- Techniques --- Technique --- Paramedicine --- Access to Primary Care --- Health Information Technology, Patient engagement, Patient-centered care, Consumer health informatics applications, Health apps, Medical informatics, Health informatics, Clinical informatics, Mobile health, Patient-facing technology, Self-managing health tools, Patient-provider communication technologies, E-heath tools, Electronic patient support tools.

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